       Document 0207
 DOCN  M95B0207
 TI    'Going public' and 'watching sick people'--the clinic setting as a
       factor in the experiences of gay men participating in AIDS clinical
       trials.
 DT    9511
 AU    Ryan L; Department of Sociology, University of Kent, Canterbury, UK.
 SO    AIDS Care. 1995;7(2):147-58. Unique Identifier : AIDSLINE MED/95345144
 AB    This paper reports findings from a study which was concerned to
       investigate the experiences of gay men living with HIV disease on
       anti-HIV clinical drug trials in Australia. Participation observation of
       a Phase 1 clinical trial and in-depth interviews with both trial
       participants on a range of clinical trials and trial nurses provided
       data which point to the centrality of the clinic setting in structuring
       the experiences of trial participants. The importance of the clinic site
       is particularly evident in respect of issues of information control and,
       particularly for asymptomatic trial participants, confrontation with
       future ill selves. A further key issue which emerged relates to the
       epidemiological profile of the HIV epidemic in Australia in which gay
       men are disproportionately represented; the HIV trial site is a
       sexualized space, presence there is commonly assumed to mean that the
       individual is gay, given the cultural co-categorization of homosexuality
       and HIV. These findings have implications for accrual to anti-HIV
       clinical trials, for compliance rates and for health care intervention
       programmes, in particular those which are concerned to monitor and
       support those participating in AIDS clinical trials. The findings are
       also of broad relevance to the wider issue of quality of life of gay men
       with HIV disease taking experimental anti-HIV therapies.
 DE    Acquired Immunodeficiency Syndrome/DRUG THERAPY/NURSING/  *PSYCHOLOGY
       Adult  Attitude to Health/ETHNOLOGY  Australia  Clinical Trials, Phase
       I/*PSYCHOLOGY  Confidentiality  Female  Homosexuality, Male/*PSYCHOLOGY
       Human  Male  Middle Age  Nursing Staff/PSYCHOLOGY  Quality of Life
       Truth Disclosure  JOURNAL ARTICLE

       SOURCE: National Library of Medicine.  NOTICE: This material may be
       protected by Copyright Law (Title 17, U.S.Code).

